Greyson Kaleb Sutton

February 2004

Greyson's birth weight was 4lb, 1 oz and he spent the first 4 weeks of his life in the NICU.

He has had several surgeries that include surgery for a twisted bowel, G-tube placement, Nissen, Para esophageal hernia repair and spinal cord compression release at the level of the neck.

Greyson developed a paralyzed left diaphram (spontaneously we think) and it remains paralyzed.

Greyson no longer has a G-tube, eats stage 2 and stage 3 baby food and drinks Nutren Jr. Greyson makes noises but does not form any words. We have developed a picture/symbol communication system that he is somewhat interested in. Greyson uses a gait trainer to walk and is able to move around the house on his own. He especially loves the touch screen computer.

Greyson's current weight is 25lb and his height is 37inches. Greyson has a younger brother who for the most part is a typically developing child. Greyson is a sweet child who has touched the heart of our family and friends. His mom and dad feel very fortunate to have him in their lives!

--- Zina Sutton

Update: December 30, 2010

I wanted to give you an update on Greyson. He pasted away last year - July 2009 just before his 9th birthday. Greyson was unable to tolerate foods and even with a feeding tube Greyson did not thrive. I wish the best to those of you still on the journey. I keep replaying our journey with Greyson trying to think about how we could have made things better for him and if we could have prevented his passing.

Greyson had a very sweet smile and cute laugh that I miss dearly but he also struggled with alot of GI pain. I know that Greyson is at peace now. I hope to remain a part of this group as I do like to look and hear about the other children with Trisomy 10q as I feel a bond with them and their families.

Take care and remain strong for your children, Zina

Name Greyson Kaleb Sutton
Birth Date Jul 2000
Date of Passing Jul 2009
Gender Male
Diagnosis der(14)+(10;14)q24;q32 de Novo
Parents Zina Sutton
City Garner, NC, USA
e-mail zina[at]nc[dot]rr[dot]com (change [at] to "@")

Sept 2003
Dec 2003


June 2009

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