Join the Community
Welcome.
If you have a family member with Trisomy 10q, we invite you
to share in our community.
The reasons for joining are: (you are welcome
to participate in any or all of these)
- To share your child's stories on this site.
- Join the googlegroup so that you can share emails and pictures with the
other member.
- Share specific information on how this condition effects your child
through a survey.
Please send an email to us at trisomy10q [at] darylanderson [dot] com
(replace the [at] with @ and the [dot] with a period) and let us know if you
want to:
- Join the googlegroup (yes or no)
- Join the website (complete the info below, and optional survey)
If you would like to be in the googlegroup;
- You will be able to share emails with everyone in the group (about 35
families) by mailing to trisomy10q@googlegroups.com
- You will be able to log into the group (trisomy10q) at the
website googlegroups.com and view all past emails, and select
how you want mail to be sent to you, etc.
- You will be able to add pages within the googlegroup site as you please.
- The group is private, so only members can view information on that site.
If you would like to have you child's information and story on the Trisomy10q
Families website (this site) for non-members and "pre-members" to view, please
send us that information (as follows);
- Child's name
- Sex of child
- Birth date of child
- Diagnosis (i.e. what parts of 10q)
- Parents' names
- City, Country (For privacy, I don't post street addresses.)
- E-mail address
- Also, a few paragraphs describing your child's condition, and anything
you think would be helpful for other parents to know about your journey
with your child.
- If you want, I can attach a photo of your child, too.
If possible, please send as a .jpg file of less than 100KB.
However, I can size and format it for you if you aren't able to.
- You can check out various kids' pages on the site as examples.
- If you are willing, it would be nice to have your street address
and phone number. I don't post this information, but it is useful
for contacting you, if needed.
Lastly, there is a Word document that contains a
survey that asks about how 10q is effecting your child. You
are welcome to fill it out, but it is not required.
Right click and download the
survey. Complete
it and then email it to us. The combined information can be viewed
in a spreadsheet that has names, addresses, and the like stripped off to make it
somewhat anonymous.
Thank you,
Daryl and Leslie Anderson
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