Trichorhinophalangeal Syndrome Association

Contact the TRPSA at Yahoo Groups

Dealing with the Struggles

Friendly Support

Help with School issues

How to be your own Advocate

Links to other helpful sites

Live Chat Support

Medical Information

Person to Person Connections Available

Where to go for help

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Trichorhinophalangeal Syndromes

This site is intended to help those affected with Trichorhinophalangeal Syndrome; type 1, 2 or 3. Help and support is also available for caretakers and loved ones. Our hope is that you will find it informative and useful. Feel free to share any information with doctors or teaching professionals. There is person to person support, including periodic on-line chats.