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How to help... |
We've received several questions regarding charitable organizations providing support for Melanie's condition. So far here are two we've had some experience with... |
The Histiocytosis Association of America is dedicated to funding research for Melanie's condition and other histiocyte disorders. Their website also provides a message board where families can network and share stories. Reading the messages from other parents going through similar experiences has been extremely comforting. The stories of kids who have fully recovered and beaten FHLH have been inspirational. |
The people at Children's are amazing. Everyone at the place was incredibly nice and made a tough situation about as pleasant as possible. We were greeted with nice conversation and smiles by everyone there from the cleaning staff to the parking attendents. The doctors seem pretty good too. |