Oculo-Dento-Digital Dysplasia

Oculo-Dento-Digital Dysplasia is a rare disorder that may be inherited as an autosomal dominant trait or be caused by a new change in the genes that occurs for no apparent reason (mutation).

Major symptoms of Oculo-Dento-Digital Dysplasia are webbing of the fourth and fifth fingers, an abnormally small transparent part of the eye (microcornea), a slender nose with narrow nostrils, underdevelopment of the outer flaring wall of each nostril (alae), defective enamel and dry hair that grows slowly.

My name is John Quasney and I have ODDD. My goal is to start and manage an ODDD support group. If you or someone you know has been diagnosed with this disorder, please contact me. We can work together to be there for each other. We can exchange the information we have about ODDD. We can listen to each others concerns. We can offer comfort when needed. And we can laugh at ourselves when appropriate.

My e-mail address is shown below. Please let me hear from you. Thanks.