LCHAD/FOD Support GroupJake's Birth/Diagnosis
The purpose of this site is to share our son Jake's storey of living with a rare Metabolic disease - LCHAD (Long Chain 3 hydroxy acyl-Coenzyme A-Dehydrogenase Deficiency). We hope others living with LCHAD will be able to gain some knowlege/hope from Jake's storey. We always love to hear from fellow LCHADer's, feel free to email us with your stories, it's nice to know that as rare as this disease is that we are not alone!
