I
was diagnosed with ARDS after a bout with pneumococcal pneumonia in 1997.
My wife and I came down with flu like symptoms at the same time. I was so
sick I don't even remember it. Forty-eight hours later my wife was much
better and I had a fever of 104. So she got me into the emergency room and
my doctor came in that night and made arrangements to have us
Life-Flighted to LDS Hospital in Salt Lake City the next morning. My
doctor was a pulmonary specialist as well as having a general practice. By
sending me to Salt Lake he saved my life.
My fever stayed around 104 for the next two weeks. During my stay I
developed sepsis and later a staph infection. I developed three
pneumothoraxes and had chest tubes in two different times. I even had my
heart stop on them one evening. Another time they didn't think I would
last through the night and I remember them taking down the cards and
letters my wife had put on the poster board in my room. When she came in
the next day she really let them have it. She knew all along that I was
going to make it out of there alive.
I was on the vent for two months and spent a couple more weeks in the
hospital regaining a little of my strength. However, when they sent us
back home to southern Idaho I was worried that it was too soon because I
was so weak. And I remember the doctors telling me that I would be there
in the hospital for another week and it would drag into two, and then
three, and more. I couldn't even remember what home looked like!
When I got home I was on a feeding tube for two more weeks and on full
time oxygen for a total of six weeks. I still keep a tank and have to use
it now and again. We moved to Boise, Idaho in November of 1999 when I went
back to work. Boise is around 2600 feet above sea level and Burley, where
we were living, is around 4500 feet. It's much easier to breathe down
here, but I still can get short of breath just walking a little too fast.
I had a really hard time going back to work. I didn't have any energy and
couldn't concentrate like I used to. I'm a computer systems analyst and
being able to focus on detail is very important in my line of work.
Anyway, last fall I found the ARDS Support Center site and was amazed by
all the stories and information that is out there. Back in the summer of
'97 when I got home from the hospital I was only able to find the
Harborview Medical Center site in Seattle that offered a pamphlet about
ARDS. Now there is a lot of information out on the web. So as I learned
more about ARDS I started asking my doctor here in Boise if my problems
may be related to PTSD. He said that they sure could be and I have since
been evaluated by a psychologist and learned that I do have PTSD as well
as survivor's guilt. My doctor started me on medication about a month ago
and I'm seeing the psychologist every couple of weeks. These visits will
continue for two or three more sessions. The medication and therapy has
completely changed my view of the future. I feel like I have my head above
water for the first time in four years! My psychologist has encouraged me
to write out all of the terrible memories I have from my illness. For some
reason they couldn't keep me sedated enough and I was in a state of being
half awake most of the time. And the things I remember are so distorted
and scary and yet so real to me. I kept writing down bullet items to help
jog my memory for about six months after I got home. Now I need to revisit
those memories and write them out to get it out of my system. It's not
something I and really looking forward to but I do believe it's important
to do it.
I think the most important thing to me now is that I am able to enjoy my
family and that I have been able to return to a near normal life style. At
least as normal as it can be considering the circumstances. I lost 52% of
the alveoli in my lungs in that illness, but like most all ARDS survivors
I feel very lucky and blessed to be alive.
I thank the wonderful people at the ARDS Support Center for the
information they provided as well as the support. I also owe so much to my
loving wife. Sometimes I think this illness must be harder on the family
and loved ones than on the patients themselves. I also owe much to a very
special young lady, also an ARDS survivor, who came into the hospital and
visited with my wife and I. Joy helped us both through a very difficult
time. I'm so thankful for all of the cards, letters and prayers that were
sent to me and offered for me. I know that the Lord was with me and
blessing both my wife and I and was watching over us throughout that trial
in our lives.
I hope and pray that this day may be better for all of you than yesterday.
And that tomorrow will be better yet. I will always keep you all in my
thoughts and prayers.
