Dear Confused,
I am not experienced with DID, so others surely may have different feedback
for you. It is crucial that you communicate your concerns to your
shrink. Medication will not cure DID, but I suspect that many with DID
do use medications at different steps along the journey to assist with
managing symptoms such as anxiety or depression. Best Wishes,
Linda
Hi Confused,
I'm sure your therapist would have said something if he/she changed your
diagnosis! You don't say what kind of meds, but I am assuming they are for
depression, or something similar? Some of my DID friends take
anti-depressants and it helps them cope tremendously. In my case the
drugs affect my alters all differently, so I refuse to take them....it
actually creates more chaos for me...I would give them a try, and see how it
affects all of you. Good luck. Jenn
Confused:
I think a lot of people with dissociative disorders try
medications during the healing process. They work for some and not for
others. Sometimes it's the dosage of the meds that is the problem,
because a dose might be just right for an adult alter but too strong for the
kids. Even with monominds, though, it takes some trial and error to get
the dosage right. So, your therapist suggesting meds doesn't necessarily
mean that he no longer thinks you are multiple. Think about daring to
ask. It would be another step in building the trust relationship that
you need with him. J.B.
Confused,
It actually took many years before I was able to take meds ~ with
success. In the very beginning, prior to my official DX, my medical
doctor tried just about everything. I was in my very early stages of
treatment: I was not in any way stable. Some of the meds caused severe
nightmares and others were never really given a chance.
Later I was prescribed Paxil. The
psych-doc let me give the word that would go on the label. The wording
was "take twice per day for anxiety." We didn't have
'anxiety' per se, and with that description they didn't work. Some of
the members (alters) became listless, had nightmares and others continued to
be deeply depressed.
I have also had meds that caused
terrible side affects, such as loss of short term memory (something someone
with DID cannot afford).
Finally I found a psych-doc that is an
expert in the treatment of DID and found a combination of drugs that works
best for me. Sometimes they don't seem like they work because I still
become depressed and actually feel normal--as if I am not on
drugs.
Some people believe that if they take
meds they are somehow a failure. This is not true. For me it meant
getting well enough to be able to work with them, rather than against them.
Lastly, if you are in treatment and
need medication, it is best to get it from a psychiatrist because they
understand the mind and how drugs works. They will also monitor the meds
on a regular basis. Emily
Confused: I discovered an alarming fact
about therapists. I've found that some who say they treat DID mean that they
think you have a chemistry problem and medicine will stop your
"sick" ideas that you have alters or Littles inside. Giving
meds is their way of making your brain go mono instead of multiple. That
scares some patients because they feel the doctor is just trying to get rid
of, kill, their alters, instead of honor and reason with them. So, its a
good idea, I think, to know where your therapist stands on that issue, and
also what you want done. Restin Wells
Joy writes: I wanted to say something about medication
from my experience. I was dx as DID almost 9 years ago after having been
wrongly dx schizophrenic and manic depressive and drugged up the ying-yang.
I
went off all meds and that is how the DID finally got found out.
My pdoc tried
some anti-anxiety meds and antidepressants and those had varying effects.
Finally he tried an anti-psychotic that has been found to be effective in
stopping dissociative episodes without interfering with therapy or
functionality. It is Risperdal and taken in low doses is has been found to
be helpful in stopping or slowing sudden and uncontrollable switching or time
lapses.
I have been on it for 6 years and it has really helped. I have done very
effective therapy and by the grace of God and all the help I have received, I
have become a therapist and work with other's w DID now. I still take
Risperdal and I also take an anti-depressant and an occasional anxiolitic.
Very
Alone,
I too felt like I needed to tell people what is wrong with me.... actually I
still do. However, disclosure isn't always the best route.
When
I returned to work after a long leave I made some mistakes with
disclosure. I told one woman who then patronized me and wanted to make
sure I was always 'okay.' My boss at the time wanted to ease my mind by
telling me that everyone felt like they were other people. Well true--people space out
when they drive (sort of dissociation), people also act one way around some people and another way
around other people. This does not make them multiple though and it made
me feel misunderstood. Another occasion my co-worker blamed another
member for missing a meeting. She said she must have told Mar.
Wrong... we work together.
I
put some http://home.comcast.net/~riversrages/disclosure.htm">guidelines
for disclosure together as I learned through trial and error. Emily
Very Alone:
I, too, have had times of wanting to tell people about being
many. Sometimes it was about wanting them to understand me. Other
times I wanted to stop hiding and be able to be me in the open. Telling
has been a mixed bag for me. Some people handled it well, other people
didn't believe me, and others simply didn't "get it." Telling
isn't good or bad, there isn't a right or wrong answer. It's more about
figuring out what is best for you. What has helped me with decisions
like this has been asking myself a few questions: What is my motivation (why
do I want to tell something or do something or say something)? What do I
want to get from the other person (understanding, compassion, acceptance)? How
will I feel if I don't get it (what are the risks)? How will I take care of
myself (in healthy ways) if it doesn't go the way I hope it will? Asking
myself these kinds of questions helps me to figure out if the risk is worth it
to me.
Another thing I learned in therapy was
to take things one step at a time. Don't tell all right away.
Start out giving a little bit of information and see how the person handles
it. If they treat you respectfully with that much, you might consider
telling them more. Before telling someone you are multiple, you might
start out saying that you are dealing with memories of being abused when you
were young. You don't have to offer any more than that. Or maybe
even start with less - something like, "I've got some things upsetting me
and I'm working on it." Go slow, one step at a time, that's what's
been helpful to me.
To help with the loneliness, places
like this where you can talk with other multiples is great. We know what
it's like. For me, knowing other multiples has been a real lifesaver.
Take care. J.B.
Very Alone,
I try
to hide the DID disorder so no one believes that I have the high level of
anxiety (they think I am faking it) but if I do tell, I get labeled and
people become afraid of me because of the very diagnosis. So I am
isolated because I don't quite fit any group." Maurine
Very Alone,
Disclosing for us was important because we know longer wanted secrets in our
life. Too many secrets in the past caused us a great deal of pain and
anguish. Unfortunately, the response has not exactly been warm.
There have been people that are afraid of us. There are some people that
totally avoid us cause we're "weird". Yet, others believe we
are possessed. No one, unless they too are a Multiple, will ever
understand. We just wanted you to know our experience. Hope it
helps. SCW